My daughter, Hassana, is currently kicking sickle cell anemia's butt! Throughout the course of her journey, my husband and I have observed a real void in the support of parents specifically encouraging them to be active members in the course of their child's or their own health care. We've started small with a simple Facebook group. We hope to grow into meet-ups, fundraisers, etc. Feel free to pass this along to whomever would benefit. Thank you.